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Breaking down the fences among registries on autoinflammatory diseases: the E-Merge project
Publication Type: Academic Journal
Source(s): Orphanet Journal of Rare Diseases, Vol 18, Iss 1, Pp 1-11 (2023)
Abstract: Abstract Background Among the various numbers of different autoinflammatory diseases (AIDs), the absolute majority of them remains rare, with a single representative in large populations. This project, endorsed by PRES, supported by the EMERGE fellowsh...
Juvenile idiopathic arthritis patients with positive family history of autoimmune thyroid disease might benefit from serological screening: analysis of the international Pharmachild registry
Publication Type: Academic Journal
Source(s): Pediatric Rheumatology Online Journal, Vol 21, Iss 1, Pp 1-9 (2023)
Abstract: Abstract Background Little is known about the association between juvenile idiopathic arthritis (JIA) and autoimmune thyroid disease (AITD) and therefore there are no indications for AITD screening in this population, which is possible using standard b...
Prevalence of familial autoimmune diseases in juvenile idiopathic arthritis: results from the international Pharmachild registry
Publication Type: Academic Journal
Source(s): Pediatric Rheumatology Online Journal, Vol 20, Iss 1, Pp 1-10 (2022)
Abstract: Abstract Background Little is known about the disposition to autoimmune diseases (ADs) among children diagnosed with JIA. In this study, we provide a comprehensive overview of the prevalence of and factors associated with ADs in parents of children wit...
Real-world comparison of the effects of etanercept and adalimumab on well-being in non-systemic juvenile idiopathic arthritis: a propensity score matched cohort study
Publication Type: Academic Journal
Source(s): Pediatric Rheumatology Online Journal, Vol 20, Iss 1, Pp 1-11 (2022)
Abstract: Abstract Background Etanercept (ETN) and adalimumab (ADA) are considered equally effective biologicals in the treatment of arthritis in juvenile idiopathic arthritis (JIA) but no studies have compared their impact on patient-reported well-being. The ob...
Looking for the best strategy to treat children with new onset juvenile idiopathic arthritis: presentation of the 'comparison of STep-up and step-down therapeutic strategies in childhood ARthritiS' (STARS) trial
Publication Type: Academic Journal
Source(s): Pediatric Rheumatology Online Journal, Vol 20, Iss 1, Pp 1-10 (2022)
Abstract: Abstract Background Although a satisfactory disease control is nowadays achievable in most patients with JIA, a substantial proportion of them still do not respond adequately or reach long-term drug-free remission. According to current recommendations,...
Manifesto IFLA-UNESCO delle biblioteche pubbliche 2022
Publication Type: Academic Journal
Source(s): AIB Studi, Vol 62, Iss 2 (2022)
Abstract: Viene qui pubblicata la traduzione ufficiale in lingua italiana del nuovo Manifesto IFLA-UNESCO delle biblioteche pubbliche, rilasciato dall’IFLA il 27 luglio 2022, durante l’87. Conferenza mondiale a Dublino. Il nuovo Manifesto, che aggiorna la versio...
Time for a general approval of growth hormone treatment in adults with Prader–Willi syndrome
Publication Type: Academic Journal
Source(s): Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-4 (2021)
Abstract: Abstract Prader-Willi syndrome (PWS) is a complex, multi-system, neurodevelopmental disorder characterised by neonatal muscular hypotonia, short stature, high risk of obesity, hypogonadism, intellectual disabilities, distinct behavioural/psychiatric pr...
Tocilizumab may slow radiographic progression in patients with systemic or polyarticular-course juvenile idiopathic arthritis: post hoc radiographic analysis from two randomized controlled trials
Publication Type: Academic Journal
Source(s): Arthritis Research & Therapy, Vol 22, Iss 1, Pp 1-11 (2020)
Abstract: Abstract Background Few clinical trials have investigated the prevention of radiographic progression in children with juvenile idiopathic arthritis treated with antirheumatic drugs. This study aimed to investigate radiographic progression in patients w...
Opportunistic infections in immunosuppressed patients with juvenile idiopathic arthritis: analysis by the Pharmachild Safety Adjudication Committee
Publication Type: Academic Journal
Source(s): Arthritis Research & Therapy, Vol 22, Iss 1, Pp 1-15 (2020)
Abstract: Abstract Background To derive a list of opportunistic infections (OI) through the analysis of the juvenile idiopathic arthritis (JIA) patients in the Pharmachild registry by an independent Safety Adjudication Committee (SAC). Methods The SAC (3 pediatr...
Maintenance of antibody response to diphtheria/tetanus vaccine in patients aged 2–5 years with polyarticular-course juvenile idiopathic arthritis receiving subcutaneous abatacept
Publication Type: Academic Journal
Source(s): Pediatric Rheumatology Online Journal, Vol 18, Iss 1, Pp 1-7 (2020)
Abstract: Abstract Background Patients with polyarticular-course juvenile idiopathic arthritis (pJIA), receiving disease-modifying anti-rheumatic drugs with immunosuppressive effects, may be at increased risk of vaccine-preventable infections. This substudy asse...