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Health care transition planning for adolescents and emerging adults with intellectual disabilities and developmental disabilities: Distinctions and challenges.
Publication Type: Academic Journal
Source(s): Journal for specialists in pediatric nursing : JSPN [J Spec Pediatr Nurs] 2023 Jul; Vol. 28 (3), pp. e12415. Date of Electronic Publication: 2023 Jun 28.
Abstract: Purpose: The purpose of this article is to provide the reader with insight and enhanced understanding of the health care transition planning process for adolescents and emerging adults with intellectual disabilities and developmental disabilities. Ther...
Evaluation of peer-mediated systems navigation for ageing families of individuals with developmental disabilities.
Publication Type: Academic Journal
Source(s): Journal of intellectual disability research : JIDR [J Intellect Disabil Res] 2023 May; Vol. 67 (5), pp. 462-474. Date of Electronic Publication: 2023 Mar 03.
Abstract: Background: As individuals with intellectual and developmental disabilities (I/DD) age, services often diminish, with many family caregivers experiencing challenges finding and navigating services. The purpose of this study was to examine the benefits ...
Working memory training in children with neurodevelopmental disorders and intellectual disabilities, the role of coaching: A double-blind randomised controlled trial.
Publication Type: Academic Journal
Source(s): Journal of intellectual disability research : JIDR [J Intellect Disabil Res] 2023 Sep; Vol. 67 (9), pp. 842-859. Date of Electronic Publication: 2023 Jun 14.
Abstract: Background: Working memory training (WMT) can offer therapeutic benefits to patients with neurodevelopmental disorders (NDD) and mild to borderline intellectual disability (MBID). However, consistent evidence for treatment benefits of WMT over placebo ...
Subjective Poverty Moderates the Association Between Carer Status and Psychological Outcomes of Adult Siblings of People with Intellectual and Developmental Disabilities.
Publication Type: Academic Journal
Source(s): Journal of autism and developmental disorders [J Autism Dev Disord] 2023 Mar; Vol. 53 (3), pp. 987-999. Date of Electronic Publication: 2022 Mar 19.
Abstract: Adult siblings are potentially important sources of care, support, advocacy, and friendship for their brothers and sisters with intellectual and developmental disabilities (IDD). Drawing on data about 851 adult siblings who completed an online national...
Reflections of Adult Children of Mothers with Intellectual Disability.
Publication Type: Academic Journal
Source(s): Journal of intellectual disabilities : JOID [J Intellect Disabil] 2023 Sep; Vol. 27 (3), pp. 671-688. Date of Electronic Publication: 2022 May 11.
Abstract: This multiple case study explores the phenomena of being raised by parents with intellectual disabilities from the adult child's perspective. Autoethnographic data was collected from the author and 4 non-disabled adults who were raised by mothers who h...
Schizophrenia in autistic people with intellectual disabilities: Symptom manifestations and identification.
Publication Type: Academic Journal
Source(s): Journal of applied research in intellectual disabilities : JARID [J Appl Res Intellect Disabil] 2023 Sep; Vol. 36 (5), pp. 1076-1091. Date of Electronic Publication: 2023 Jun 02.
Abstract: Background: The assessment of schizophrenia in autistic people with intellectual disabilities is challenging. This study aimed to explore the identification of schizophrenia in this population.Methods: Using data from a clinical multi-centre study, rep...
Experiences of family caregivers of people with intellectual disabilities from rural areas in southeastern Iran: a qualitative study.
Publication Type: Academic Journal
Source(s): BMC psychiatry [BMC Psychiatry] 2023 Aug 22; Vol. 23 (1), pp. 613. Date of Electronic Publication: 2023 Aug 22.
Abstract: Background: Caring for people with intellectual disabilities can be a challenging task, but it can also bring about positive experiences for family caregivers. The present study aimed to explore these positive experiences and shed light on the ways in ...
Parent perspectives on the assessment of quality of life of their children with profound intellectual and multiple disabilities in the Netherlands.
Publication Type: Academic Journal
Source(s): Research in developmental disabilities [Res Dev Disabil] 2023 Aug; Vol. 139, pp. 104536. Date of Electronic Publication: 2023 Jun 01.
Abstract: Background: Assessing Quality of Life (QoL) of persons with profound intellectual and multiple disabilities (PIMD) is challenging, yet QoL plays an important role in medical decision-making processes concerning persons with PIMD. The perspectives of pa...
Experienced support at work, team climate and collaboration in teams working with people with mild intellectual disabilities and severe challenging behaviour in residential care: a cross-sectional study.
Publication Type: Academic Journal
Source(s): Journal of intellectual disability research : JIDR [J Intellect Disabil Res] 2023 Aug; Vol. 67 (8), pp. 782-795. Date of Electronic Publication: 2023 May 30.
Abstract: Background: This study explored the perceptions of staff for people with mild intellectual disabilities or borderline intellectual functioning and severe challenging behaviour in relation to the support they received at work from four groups of profess...
Hey Google! Intelligent personal assistants and well-being in the context of disability during COVID-19.
Publication Type: Academic Journal
Source(s): Journal of intellectual disability research : JIDR [J Intellect Disabil Res] 2023 Oct; Vol. 67 (10), pp. 973-985. Date of Electronic Publication: 2023 Jun 15.
Abstract: Background: Amidst the greatest technological advancement that societies have seen, the (health)care and quality of life of all, and especially of vulnerable individuals, see unprecedented improvements. Intelligent personal assistants (IPAs), such as G...